You are currently browsing the category archive for the ‘HLHS’ category.

Julie, the NILMDTS photographer, gave me a sneak peek of the pictures she got of Tristan. I will be sharing them after Neil has had a chance to see, but they are spectacular. I stared at each image for ages today trying to recall his baby scent and the silkiness of his hair under my chin, and the feeling I had when Neil brought him to me around the surgical curtain and held his cheek to mine. I just kept begging, whispering to him, “Please stay- just as long as you can. Please, stay!” But how do you convince an angel to stay in this dreary world? Even so, he did.

Tristan Pro 9

Daddy's boy

So many memories in one day and they all keep fading, more each day. But those pictures have brought those memories back to me on a day I really needed it.

I think I am doing well in some ways. I get out of bed each morning, I go for days without crying and I think in general I am handling things well. But in a separate compartment of my life, my heart is broken. Shattered, actually. A new heart-angel friend said it so well; That out of the millions of pieces of her broken heart, she was being built a new and stronger one. But it’s such a painful process.

I am not worried about Tristan at all. I know he’s perfectly ok. He’s probably watching me with a “tsk, tsk, tsk… if only i could show you the whole picture,” on his face. But my heart aches for the moments I should be having with him now; the middle of the night feedings, the excitement to take him out to church and in public, waiting for the night he would finally sleep all the way through, the trip to Kiddie Kandids to get his first pictures done, reminding McKenna not to try and pick him up, and keeping Adele from poking him in the eyes!…Just holding him.

Tristan Pro 4

Welcome to our family, Tristan

I thought I would share a poem I wrote for Tristan shortly after we were given our options and asked to consider them. It’s very rough and flawed, but I don’t want to edit it because the way I feel now would change it because its different from how I felt then. And I want to keep that. So for Tristan,


The Choice

What would you pay

For one single day;

To feel the warmth of sunlight,

As it’s washed from your face

Tristan Pro 8

Mommy's angel

By late Autumn breeze laced with frosty bite?

What would you give,

For one moment to live;

To be held in a tearful embrace,

As your heart blazes warm, overflows with pure love,

As it reflects golden in my face?

How much is it worth,

Your foot on this Earth;

To run, to jump, to dance, to play,

Chasing fireflies o’er grassy hills

As pink skies retire Sun another day?

Is there pain too much, a price too high

Tristan Pro 7

"we said hello, and at the same time said goodbye"

For the chance to see tomorrow’s dawn sky;

When you  long to return Home above,

Leaving our loving hands

For the arms of Jesus’ love?

– By Arae Wyatt 2009

Happy One Month memories to Tristan today. We love and miss you dearly.

Our beautiful Angel

Tristan and the puppy McKenna picked for him -photos by Julie Williams, NILMDTS